The Don Taylor Users Manual

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OVERNIGHT TRAINING- How to do Water Management in bed

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DRT  Water Management In Bed:   Get the blue wash cloth. Fold it to quarters.  Do the white tube first by pulling it apart at the peep valve. Be careful not to twist the peep value, it will change my peep!  Grab the tube close to my belly and with the other end point it down off the bed with all your might while keeping your eye on my trach so you don’t move it.  Hold the blue wash cloth against the open end of the tube to catch the water. Pull hard twice.  Attach the peep valve quickly because I can’t breathe without the peep valve attached.  Next is the blue tube. Tap the water down.   Continue to shake all the way to the humidity bowl.  The goal is to empty the water into the bowl.  If you took the vent cardboard off, attach the cardboard again and it has an UP ARROW written on it.  After water management: Put your hand between the tubes and my belly to see if the tubes are touching my hands or bell...
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Read Before 1st Training- To all my Suck-a-Teers

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DRT  How to Do Mouth Suction The Routine Start on either side. Go deep into my cheeks outside my teeth. Do both sides. When I open my mouth go for the roof of my mouth. Never put the wand on my front teeth, go in from either side. I have a chip in my front tooth from the wand. Don’t put it in past the bite marks on the wand. Hold the wand vertical. If you angle the wand it doesn't suck effectively. Here's a picture of wand placement during roof:  I’m having trouble when you first put the wand in my mouth because of my mouth muscles are getting weaker, especially during the end of the day. Sometimes I almost have to teach my mouth muscles how to form a vacuum around the wand. That takes a few seconds. So just put the wand in my mouth towards the roof. Hold it lightly and don’t move it around in my mouth.  I must form a vacuum between my lips and the back of my mouth. When I open my mouth again, go under my tongue, don’t dig deep. That hurts. Just go in a li...
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READ BEFORE 1st Training- Communication

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DRT  My most basic form of communication is with my eyes- open for YES, closed for NO. My best way to communicate is when I am on my eye-gaze computer. But if I am not on my computer, and you need more than yes or no, use the SPELLBOARD.  The colored side faces you.   Important! You only get 3 chances to guess what I need - after that get the spell board. Please don't waste time especially in the middle of the night guessing.  During your counting with the numbers when I close my eyes it means you are on the wrong side. For example when you say 1 and I close my eyes go to number 5.  The following are also some communication shortcuts using my lips and/or eyes- LIP READING Lips open and closed quickly = chapstick  When I chew = that means suction please When I feel pain, I will make an ugly face.  There are a few words that you must learn that I try to do with my mouth. For example, off and up. These require serious lip reading.Unfo...
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