The Don Taylor Users Manual

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Read Before 1st Training- Important Trach Information

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DRT  I would like to start by saying that I’m glad that I made the decision to continue to fight this horrible disease by getting a trach. A few of my friends (PALS-People with ALS) when confronted with the inability to breathe, decide to hang it up. I choose to LIVE! WATER MANAGEMENT Every time you come, do water management on both vent tube at 11 AM and 7 PM. The key points are: Empty both tubes of excess water. Always empty water AWAY from me, NOT into me. Remove clear tube from PEEP valve and drain water into wash cloth. NEVER allow the PEEP valve to get wet.  Separate the white tube from the peep valve. Don’t twist the peep valve. Hold the white tube in two places, up by my belly and down by the peep  valve.  Pull hard on the white tube while holding the other end that will empty the water out. Do it twice.  The blue tube is different. Tap the blue tube starting up at my chest and continue down to the bottom. Never pull the blue tube because of the wires.  Carefully d
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OVERNIGHT TRAINING- Vest

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DRT  How to put the vest on in the morning:  I prefer that you don't lower the vent arm.  Put my feet on the box.  Pull the vest machine out of the closet.  Take the finger foam and vest out. Don't put them on yet.  Take off my peg tube, metal clip and rice pad.   Important , put the paper towel on my right shoulder on the roll pillow so it doesn't get lost behind my back.  Put my feet on box because when you pull vest down, I always shimmy down.  Important, the next few steps can be done on either side of the bed depending on how strong your upper arms - if you can pull down the vest.  Put the vest behind my neck. Do not lift my head!  Pickup my right hand first to put white tubes under my arm pit. Do the same with my left hand from the window side of bed (if you choose to do all from that side of the bed).   Grab the bottom of both sides of the vest. Not the top for a better grip!  Shimmy both sides down until the bottom of the vest just slightly past m
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Read Before 1st Training- How to Transfer and Wheelchair Comfort

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DRT   How to Transfer  WHEELCHAIR Hints: Wheelchair should have 4” ROHO cushion. Plus a blue or green chux to protect ROHO if I leak. I have weak stomach muscles, so be sure my arms are always on the arm rests to prevent me from falling forward. It is very painful on my PEG tube when I’m leaning forward unsupported. It's very important to turn the front WC wheels before transfer so you can move the WC with ease.  BED to WHEELCHAIR or SHOWER CHAIR - for my CNA Use the PIVOT DISK for transfer to and from bed. Always transfer me with my shoes or slippers on. With shoe straps behind my ankles. That way I won’t slip off the disk.  If I am shaking help me to put my heels on the disk, that way I am not on the balls of my feet. Push your hands on my knees to make it stop. When you lift me, don’t give me a bear hug, it hurts my PEG tube. Lift me using my rib cage with your arms on my back or under my armpits. NEVER PICK ME UP WITH MY ARMS OR SHOULDERS Pay close attention to w
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